When we first heard the word “Spectrum” as in “he is on the Spectrum” and “Autism Spectrum Disorder,” for the term “spectrum,” our minds often pictured a line or scale, with “mild” on one end and “severe” on the other. We quickly learned how wrong – and unhelpful – that picture is. In our journey as parents of a non-verbal autistic son, one of the most profound lessons we’ve learned is the true meaning of the “spectrum.”
We now understand that “spectrum” doesn’t mean a simple line from mild to severe. Instead, think of it as a unique combination of traits, strengths, and challenges for each individual child. Your child, or your loved one, will have their own distinct profile of characteristics – some areas where they might need a lot of support, and other areas where they have amazing abilities and strengths. It’s truly about their individual traits and abilities, not just where they fall on a single scale.
When someone talks about “the Autism spectrum,” they are really talking about the wide range of ways autism can show up. This includes the various traits, skills, and levels of support needs that people with autism may have. This is why the saying “If you’ve met one person with Autism, you’ve met one person with Autism” rings so true. No two people with autism are exactly alike, and understanding this diversity is key to truly supporting our loved ones.
A much better way to visualize the autism spectrum is not as a single line, but as a unique blueprint or a control panel where different “sliders” are set at different levels for each person. It’s made up of many different traits, and every single autistic person has their own unique mix. Someone might have incredible strengths in one area (a “slider” pushed all the way up!) and need more support in another (a “slider” that’s lower).
To help paint a clearer picture of how diverse each individual’s profile can be, let’s explore some common areas where these “sliders” might be set differently. Remember, these are just examples, and your child’s unique combination will be entirely their own.
Understanding your child’s individual “slider” settings helps you see how autism manifests in their life, so you can learn how to best support them for who they are.
You might see “Level 1, 2, or 3” on a diagnostic report for Autism. It’s important to know what this means. These levels are simply a snapshot in time, describing the level of support a person needs to function in a world not always designed for them. They are not a permanent box. A person’s support needs can change day-to-day, or as they grow and learn new skills.
Think of it like this: someone might need Level 3 support at a loud, crowded mall, but only Level 1 support in their quiet, predictable home environment. Another example is one might be a Level 3 when they are younger and move to a Level 2 or 1 as they get older and get various therapies, mature etc.
Throw away the idea of a linear spectrum. When you see your loved one as a unique combination of strengths and needs, you can celebrate their gifts while providing targeted, meaningful support for their challenges. It’s about seeing the whole, amazing person in front of you.
Disclaimer: This blog post shares general information and personal experiences about the Autism Spectrum. It is not intended to be medical or diagnostic advice, and you should always consult with qualified healthcare professionals for personalized understanding and guidance regarding your child’s specific needs or diagnosis.
Next blog in this series: Neurodiversity Explained: What It Is and Why It Matters