While it may feel overwhelming to think about the future, proactive planning ensures crucial support and resources for your loved one. It’s always better to be prepared for future needs than wish you had started sooner. It’s never too early to start.
Ensuring continuity of care as your loved one transitions from pediatric to adult healthcare.
Many individuals with autism can live fulfilling, independent lives with appropriate supports. However, some may need ongoing assistance with daily living, safety, or decision-making. Planning for this possibility ensures they'll have the resources and support network they need, even after you're no longer able to provide care.
Include siblings in age-appropriate discussions about future planning. Help them understand their role (if any) in their sibling's future care, but don't assume they'll take on caregiving responsibilities. Consider their own life goals and plan appropriately.
It's never too early to start planning, but transition planning typically becomes more formal around age 14-16. However, teaching independence skills and exploring interests should begin much earlier. Financial and legal planning can start at any time and should be reviewed regularly.
Flexibility is key in future planning. Regular reviews and updates to plans ensure they remain relevant as your loved one grows and their needs evolve. Build in options for different levels of support and be prepared to adjust as circumstances change.